Today, we had a late appointment at the Cancer Center. Luke was the last patient seen. The infusion center was empty. Luke also seemed more irritable at accessing his port, but recovered quickly with his mood. He had IV doxorubicin and IV vincristine and IV zofran. His counts have come down drastically with his ANC dropping to 340 which means severe neutropenia and a high risk of infection. During his infusion, he had an appetite where he ate a Chik-fil-a sandwich, soup, and some beef jerky (thanks to his grandma) while watching Lion King. Luke also had some dark spots on his tongue and the doctor thinks that it is related to his chemotherapy. She also gave him some nystatin to make sure that his tongue doesn't have thrush. He has also been complaining of leg pains and cramps. They think it is because of the steroids effect on his bones and added some calcium + vitamin D tablets to his already extensive drug regimen. He will again start on dexamethasone tomorrow for 1 week with zantac. His de-access was quick thanks to Pat, but I can't say it was pain-free. Thankfully, even with all that is happening within his body, he is an active 3-year-old with no signs of leukemia from the outside. Even his hair is still there. Luke is ready for Halloween with his batman costume and carved Swiper the Fox on the pumpkin tonight. We pray for protection for Luke in the next few weeks against any viruses or infections while his ANC is low and that his numbers improve.
praying and praying!!!
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