We have been asked by many folks....what does Luke like? Sometimes, it's because they may want to give him something. Sometimes, it's because they want to pray that he continues to enjoy those things, and to be encouraged by those things.
Since he has been house-bound for so long, we have had to find clever ways to keep him entertained and engaged mentally and physically. Here are some of the things Luke has found himself "liking".
1 - Playing football (with Daddy): wow, he plays dirty; first, he tackles me, then he kicks me in the gut; he doesn't know it yet, but we got him an eagles uniform to play in (even has a soft helmet)
2 - animated movies (like Toy story, incredibles)
3 - trains, trains, trains
4 - CARS, CARS, CARS
5 - my baby can read dvd
6 - books
7 - arts and crafts
8 - oh boy...here's one...play kitchen stuff...he saw daddy slaving away in the kitchen and thought it looked fun...we got him a play kitchen and he makes us laugh so much as he whips around it frying up things, microwaving things, etc...imaginary heat, of course :)
9 - praying, singing, reading the Bible
10 - running around outside (it is ok for him to be outside of the house)
11 - helping daddy with the laundry (don't laugh, he really helps!) :)
12 - dinosaurs and dragons
13- bath tub play
14 - eating edamame (he finds them tasty and fun)
15 - carrot cake
16 - green berry burst hawaiian punch
17 - broccoli and cheese
18 - chasing and bursting bubbles...picture him chasing down bubbles, giggling hysterically, and popping them
19 - playing car race with anyone he can find, including uncles, aunties, and grandparents
20 - thank God for nick jr. (he loves pretty much all nick jr.); while his counts were good, we took him to see "storytime" featuring several nick jr characters...he was in shock (so excited...he was mesmerized)
Well, that some of the things Luke continues to enjoy. We are thankful that these things have and continue to fill his heart with joy.
Tuesday, December 7, 2010
Monday, December 6, 2010
Continuing to get comfortable?
Today, Tuesday, December 7th, 2010, marks the 6th month since we found out that Luke had leukemia. Wow. Time has flown by. We are so thankful that our life has been filled with love, peace, comfort, and strength. Thanks to God, and thanks to all of our loving family and friends. Also, thanks to those we have met in passing, online and in person, who may have encouraged us and prayed for us.
It has been a trying time, but we have had far more good days than bad days. We still have our eyes and hearts open to where God is leading us.
Nearly everything we thought about or planned prior to June 7th,. 2010 has changed. God-willing, we will gain clarity and re-gain vision towards the future. In many ways, we have jumped forward, and in some ways, he have stumbled, and in other ways, we have not moved. Your continued prayers are needed and greatly appreciated. 6-months of treatment have been completed, and God-willing, Luke has 33 more months to go.
Luke has always been our special and precious little boy. In these last few months, we have seen our baby take on the role of an older, more mature child. That is eye-opening, since he's only 3. Many times, he has helped us, when we needed. He has even told us to "take a deep breath" or "let us pray" or "turn off the tv, it is nap time". We love him so much. Our hearts break, knowing he must endure all of this, but we are comforted with his resilience and his spirit.
Pictures from the clinic...
Here's Luke playing with a netbook. Wow. Doesn't he look grown up?
Here's Luke making some puppets with some University of Houston Volleyball Players. Hmmm...he seems to enjoy warming up to ladies. Nice!
Here's Luke in the infusion center playroom. Daddy explained to Luke what the Puppet Theater was for, and Luke proceeded to conduct a puppet show. Daddy was the only one in the audience, but it was special.
It has been a trying time, but we have had far more good days than bad days. We still have our eyes and hearts open to where God is leading us.
Nearly everything we thought about or planned prior to June 7th,. 2010 has changed. God-willing, we will gain clarity and re-gain vision towards the future. In many ways, we have jumped forward, and in some ways, he have stumbled, and in other ways, we have not moved. Your continued prayers are needed and greatly appreciated. 6-months of treatment have been completed, and God-willing, Luke has 33 more months to go.
Luke has always been our special and precious little boy. In these last few months, we have seen our baby take on the role of an older, more mature child. That is eye-opening, since he's only 3. Many times, he has helped us, when we needed. He has even told us to "take a deep breath" or "let us pray" or "turn off the tv, it is nap time". We love him so much. Our hearts break, knowing he must endure all of this, but we are comforted with his resilience and his spirit.
Pictures from the clinic...
Here's Luke playing with a netbook. Wow. Doesn't he look grown up?
Here's Luke making some puppets with some University of Houston Volleyball Players. Hmmm...he seems to enjoy warming up to ladies. Nice!
Here's Luke in the infusion center playroom. Daddy explained to Luke what the Puppet Theater was for, and Luke proceeded to conduct a puppet show. Daddy was the only one in the audience, but it was special.
Transfusion - November 22, 2010
We never truly understood how important giving blood can be. We will definitely start giving blood. During Luke's 'delayed intensification' phase, his blood counts went down to a critical level, and he needed a transfusion of blood and platelets. Thanks to the donations of others, Luke received the needed blood, and his counts improved greatly. Though his immune system is still down, and he has had to stay at home for about a month now, he is in good spirits, by God's grace.
Here's is Luke, all smiles, as we went to the clinic for his first transfusion since being admitted to the hospital during his initial diagnosis (in June).
Here is Luke looking up at the blood infusing into the port. Who knows what he is thinking? On this day, he received blood. A few days later, he received platelets. He developed an allergic reaction to the platelets, and the nurses gave him benadryl iv and hydrocortisone iv. Thankfully, it was not a serious reaction (a few little bumps on his head/face), but this does mean that any time he will need similar transfusions, he will be pre-medicated with these medicines.
Here's is Luke, all smiles, as we went to the clinic for his first transfusion since being admitted to the hospital during his initial diagnosis (in June).
Here is Luke looking up at the blood infusing into the port. Who knows what he is thinking? On this day, he received blood. A few days later, he received platelets. He developed an allergic reaction to the platelets, and the nurses gave him benadryl iv and hydrocortisone iv. Thankfully, it was not a serious reaction (a few little bumps on his head/face), but this does mean that any time he will need similar transfusions, he will be pre-medicated with these medicines.
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